Categories: Odisha

Odisha Child With Rare Genetic Disorder: Sonu Sood Appeals For Help To Treat Him

Bhubaneswar: Actor Sonu Sood is seeking help from people to donate generously whatever is within their means, to treat Rajveer, a child from Ambapada village in Kandhamal who is suffering from a rare genetic disorder.

The parents of one-and-a-half-year-old Rajveer reached out to Sood in Mumbai. He, in turn, sent out a request to donate whatever they can for Rajveer’s treatment.

In a video message, Sood said, “We have seen in the past what public cooperation can do. People have been cured of this disease before. So, I request all to come forward and donate as per your capacity so that the child gets a new life.”

Rajveer suffers from Spinal Muscular Atrophy (SMA), a rare genetic disorder where a person can’t control the movement of muscles due to the loss of nerve cells in the spinal cord and brain stem.

His health is deteriorating rapidly. He urgently needs a Zolgensma injection, which costs Rs 16 crore and has to be imported from the US life. Doctors treating him in Bangalore, have given a deadline of four months for the administration of the life-saving injection.

The couple has also sought help from CM Naveen Patnaik for the treatment. Rajveer’s mother Tamalika had even staged a dharna outside Naveen Niwas on December 2.

OB Bureau

Recent Posts

One More MP From Odisha In 39-Member JPC On ‘One Nation, One Election’ Bill

New Delhi/Bhubaneswar. After two Lok Sabha MPs, a Rajy Sabha member from Odisha, Manas Ranjan…

12 minutes ago

Gukesh, Arjun & Praggnanandhaa: Indian Chess Set For Global Conquest

He is an unpredictable force on the chess board - creative, aggressive and balanced in…

42 minutes ago

Two Textile Inspectors Held For Taking Bribe In Odisha’s Boudh

Bhubaneswar: The Odisha Vigilance sleuths on Friday apprehended two textile inspectors in Odisha's Boudh district…

57 minutes ago

Security Guard Stabbed To Death In Odisha’s Jharsuguda

Bhubaneswar: A man working as a security guard at a private factory in Odisha’s Jharsuguda…

1 hour ago

Heavy Rain Warning For Odisha Today; Day Temp Drops By 9°C In Bhubaneswar

Bhubaneswar: With the well-marked low pressure expected to intensify into depression over westcentral Bay of…

2 hours ago

Queue System For Hassle-Free Darshan At Puri Jagannath Temple From New Year

Bhubaneswar: The Odisha Government is planning a queue system for hassle-free darshan of the sibling…

2 hours ago

This website uses cookies.